Project HOPE US Board Visit and Dinner

A couple of weeks ago now we had the privilege of hosting a delegation from our Project HOPE HQ in Millwood, VA as well as representatives from the Project HOPE Board.

This team led by Dr John Howe, President & CEO of Project HOPE did a three country two week intense visit with the aim of getting to understand the various programs that Project HOPE runs on the Africancontinent.

We had the privilege of hosting the delegation for a couple of days here in Johannesburg where they were able to come out to Zandspruit and visit our program, get to know our staff, take a tour of Zandspruit on foot to appreciate the complexities of township life as well and to meet with some of our patients at the HOPE Centre clinic. They were also able to visit the City of Joburg Masakane clinic and see some of the challenges that are faced there on a daily basis

The day was a wonderful success with the delegation leaving having a much better understanding of the scope and size of the program and the immense need for Project HOPE to work in Zandspruit and the surrounding area.

After a long day in the baking sun, we all went back to the Hyatt Hotel in Rosebank where Project HOPE hosted a dinner event attended by 100 senior executives who represented all but a couple of  international pharmaceutical companies working in South Africa, government, the NGO sector and academia. The aim of the evening was to highlight the work that Project HOPE is doing around the world in non communicable diseases as well as to specifically talk about our baseline survey findings from the HOPE Centre program here in South Africa.

Very rarely does an event like this occur, and as the diabetes world is fairly small and people usually move from one company to another it was like a big reunion for many attendees!

Dr Howe gave the opening address where he talked about our long history with working together with corporate organisations to improve the health of disadvantaged communities - some of those relationships are over 50 years old.

Ms. Sandhya Singh the Director for Chronic Diseases, disabilities and geriatrics at the National Department of Health shared with us the governments strategy for how they will go about tackling this growing problem of NCDs here in South Africa.

Professor Rheeder then came up and shared our baseline findings from our initial community survey and screening days. If you would like a copy of this then please contact me and I will be happy to post a copy to you.

I then closed off the evening sharing some of the real challenges that diabetic and hypertensive patients face living in a township like Zandspruit.

The dinner was a roaring success with many opportunities now to follow up with companies who would like to come and see our work in Zandspruit and potentially partner with us in the future.

If you would like to come and visit our site please do not hesitate to contact me at slawson@projecthope.org

Thanks for reading!

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Vegetable Gardens

Drew Wallace, a volunteer from the US posts his final blog before going back home...

Time goes by way to fast. It feels like I just got here in South Africa, and already its three weeks later and I’m leaving. I’ve learned so much while here, it’s been an experience completely unlike anything I have ever done before. My whole life has been spent inside the U.S. and this is the first time I have ever been outside that shell of American middle class comfort. As much as Project HOPE and South Africa has given me in terms of experience and unfailing hospitality, I hope I was able to give back just as much of my time and effort to help get the HOPE center ready to see patients, and start to make a positive impact in this community.

While here, I was able to finish up a few different types of gardens, and make instruction booklets for each one. With luck and a little sunshine, the plants will take root and grow, and start producing healthy foods, and maybe inspire some of the HOPE center’s patients to try making their own gardens, and be able to eat a little healthier, and manage their conditions a little better. I wish I could stay around just a few weeks longer, and get to see the fruits of our labor here in South Africa, see the first patients walk through the doors of the clinic, hopefully see the first vegetable gardens start to pop up in the township, but life and school gets in the way, as it so often does.

Anyways, so long South Africa, I hardly knew ya but you taught me so much, I hope I was able to give a little back. Maybe someday I can return, time willing. I know I certainly want to.

 Project HOPE is an amazing organization, and I’m proud and ever grateful that I got the opportunity to volunteer with them. I’m certain that they will make a gigantic impact for the better in this community and I wish them all the best in the future operations of the HOPE center.        

Thanks Drew for all your hard work! If anyone would like to come and volunteer with Project HOPE here in South Africa please contact me on slawson@projecthope.org

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Cosmo City Screening Day

Drew Wallace, a volunteer from the US, blogs about his first screening event in Cosmo City...

 One of the biggest problems with chronic disease care in Africa is the lack of diagnosis. Most people with diabetes don’t know they have it until they start to develop acute symptoms, blindness, foot ulcers, etc. What we are trying to accomplish with screening days is to identify people who are diabetic and pre-diabetic before they start to exhibit symptoms, so that they can then manage their condition, and never develop some of the problems that arise when diabetes and high blood pressure go too long undetected. At the screening day, people take about 5 minutes to get tested, and if their results show they have diabetes or high blood pressure, we can refer them to a free government clinic to receive treatment or to our  own HOPE Centre Clinic, which ever is closer for them to get to.

                                                                  

One of the great things about South African health care is that medicine is provided free by the government, but the diagnosis and management system is woefully underdeveloped. To highlight this of the 110 people we screened in Cosmo City we found over 50% of people were either overweight or obese which increases their risk of developing diabetes, and 70% of people had hypertension. We also were able to diagnose 7 people with diabetes who came to us with dangerously high blood glucose levels.

Hopefully, through screening events like this we can get more people to be aware of their conditions, and encourage them to stick with their treatment plans, to live healthy and full lives.

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First Impressions - Blog from Volunteer Drew Wallace

Drew Wallace, a volunteer from Virginia, USA is here in South Africa for the first time helping Project HOPE South Africa set up its nutrition program as part of the HOPE Centre project. Here is a blog about his first impressions....

So I guess it would be appropriate to start off with a bit about me. This August, I’m going to be a sophomore at The College of William and Mary (Go Tribe!), majoring in International Relations, with a minor in premed focused kinesiology.  I have always been interested in global health and wellness around the world, but in all my 19 years of life, I have never been outside of the continental United States. Sooner or later, this would need to change if I wanted to pursue my dream of helping people around the world lead healthy lives, so I jumped at the opportunity to volunteer with Project HOPE South Africa.

When people think of health problems in Africa, they generally think of infectious diseases, HIV, Malaria, etc. but in actuality, Africa, most specifically South Africa, has the world’s fastest growing diabetic population, and diabetes, as well as the heart conditions associated with diabetes and an unhealthy lifestyle, is the leading cause of death in South Africa. What Project HOPE South Africa is trying to do is establish comprehensive, across the board care for diabetic and hypertensive patients in Johannesburg’s poorest neighborhoods. My role more specifically, is to help develop a nutrition and exercise program, trying to get more people to grow their own vegetables to supplement their diet, and replace fried meats and starches, as well as get out and exercise in the very limited space they have.

Getting off the plane after a 15 hour flight, your mind really doesn’t register that you are now in South Africa, the airport could be in any metropolitan area in the United States, there are no giraffes, no zebras, no lions, just a typical airport terminal. Large parts of Johannesburg would fit in most anywhere in the first world, if not for the ever-present security fences and armed response signs, a constant reminder to this isn’t the suburban Virginia I’m so used to. The contrast becomes even more apparent when you get into the townships, informal settlements like the one the Project HOPE office is located in. South Africa, especially Johannesburg is a country with intense dichotomy, on one side of the road you could have a first world shopping center or a beautiful golf course, on the other side, a village of corrugated metal shacks crammed together along narrow unpaved allies.

The challenge now is to show families how they can grow healthy food in the limited space they have, in order to manage their diabetes. To do this we will be building a variety of demo gardens, and putting together instructions on how to build them, so that diabetic patients can better manage their condition with proper exercise and nutrition. I’m really excited for this opportunity to help out, and hope the new clinic can make a great positive impact on the community!   

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When is it OK for Chronic Illness to be normal?

When is it ok for chronic illness to be normal? This is something that I have been pondering for the last few days, but it first came up when I used to live in Mozambique. There are certain chronic illnesses which unfortunately result in people suffering pain and other disabilities with very little that can be done. However, there are other conditions where this does not have to be the case.

When I lived in Mozambique, I stayed in a Malaria endemic area, and over the course of a couple of years suffered from multiple bouts of the disease. The first time I got it I remember the crippling headache, fever, lethargy like an extreme case of the flu. After I had taken my medication for about a week I felt much better and continued on with life as normal. Yet I clearly remember the subsequent bouts of malaria were often not as crippling - yes there was a fever and a headache, but because of work and other commitments I often couldn't take time off and I would soldier on through. Then it began to hit me. What if everyone was feeling like this? What if the many people who had malaria, had a constant headache, felt tired, but because of pressures to just survive,  pushed on through without taking time off to go to a clinic and queue for a test and rest at home. Would this feeling over time become the new "normal" forgetting what it was like to live pre-malaria?

Fast forward almost 9 years and I am sitting in Zandspruit, South Africa wondering exactly the same thing. We are screening people of diabetes and hypertension. We've come across some patients with blood glucose of 37 mmol/l or 666mg/dl, another patient with 27 mmol/l or 486 mg/dl. Many patients had blood pressure of over 160/100 mmHg. In fact over 35% of patients have had an abnormally high blood sugar reading.  One of my first questions I ask these patients is, "How are you feeling?" Often the response is tired, headache, blurry vision, sweating a lot, having to use the bathroom frequently. My next question is "Are you aware that you have high blood or high blood sugar?" Some patients say yes, whilst others say no.

This one patient situation typifies most. He had a very high blood sugar and blood pressure level. He knows that he is diabetic and has high blood pressure. He used to take the tablets, but he doesn't anymore because he didn't think they worked, they ran out, and he couldn't take time off work to go to the clinic and queue all day to get another prescription.

So, when is ok for chronic illness to be normal? Have patients simply forgotten what it was like to "feel" energetic and headache free? Do people soldier on feeling like this because in their minds there is no other option, or is it because they don't know any better?

The answer is NEVER. It should not be acceptable. You and I would most likely do everything we possibly could to feel better again. But we are the lucky few, where barriers to quality healthcare are few and far between. 

 I suspect for the patients that I met in Zandspruit, the reason that chronic illness has become 'normal'  is a combination of living on the bread line trying to make end's meat, and the absurd inefficiencies, lack of care, education and other barriers that they face at government clinics that leads to a sense of hopelessness and acceptance of feeling ill.

My hope is that as we slowly break down the barriers in the community, reducing wait times at clinics, improving patient self care, reducing blood pressure and blood sugars to a manageable point, these patients will feel so much better, more productive, able to do things they haven't been able to do for years, that they will advocate for improved quality, improved access to preventative screenings like the ones we are doing.

Over the coming weeks Project HOPE in partnership with Eli Lilly, The University of Pretoria, Empilweni Nursing College, and other community stakeholders will continue to hold screening days to make people aware of these conditions, and then will be able to refer them to our HOPE Centre clinic where they will receive  proper care and attention and hopefully very quickly begin to see drastic improvements in their health.

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